Tag Archives: depression

Time is a foreign country …

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Time is a foreign country.

At least I think it is.

Days meld. As does the precise time on the clock. From intense activity to drift, with Jed in a place outside of time, outside of locale, outside of the ordinary and the distinct.

In the journey that is my caregiving world, I work hard to lean in. To accept the tickles and jokes. The multitude of “I love yous'” that come my way across the day and the night. In between sleeping. And wondering who is in the house and where the bathroom is.

I feel for his dislocation, but he takes it in stride. Smiles. Says, “is anyone here?”

I say, “No.”

“You mean it’s just you and me?  Yay!”

My heart smiles and aches. Just us and not us.

We’ve been out a bit.

Mani, pedi, haircut and shave day. And a lovely walk. Pizza. The weather fine. Observing flowers. The new green of Spring leaves. The many, many babies out and about in their strollers.

This last his joy.

New life. Flowers. Babies. Toddlers. Children.

He lies down on what used to be Izzi’s bed as I work at my mother’s old sewing table on the other side of the room.

Jed and Sugar Ray.

Pals.

Sharing the space. The company. Being near. Our little family with Milo our other kitty off somewhere … and Izzi long since on her own … though one of us, always, on her visits home.

Doctor’s appointments, medical tests, companion caregivers come and go. Days blend some more as do the new normals. With me forgetting, two Fridays in a row that it was a companion afternoon. And, truth be told, my joy as I opened the door. Whew. A free few hours. Hours I worked on my book about women’s boxing before taking a lovely unfettered walk.

And now a Saturday. Jed full of the need to sleep. On his bed. In the room where I work. Padding in and out. Before he’ll organize his books and and clothing for the umpteenth time.

“It’s me again,” he says, standing at the doorway.

“Hi,” I say.

“Goodbye,” he says walking off to the living room.

Been a while …

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Budding tree, Cadman Plaza Park, Brooklyn, March 2, 2023

I’d say my vision has certainly been selective of late. Well actually that’s pretty charitable. I’ve been downright sad with a tinge of hopeless, which means the exterior world has a way of disappearing. Too difficult to negotiate with feelings that make it almost embarrassing to speak any sorts of truth. Even to those closest to me or to the folks I know who are caregivers and connect to those feelings more often than any will say.

Staying present is this issue for me.

If one is present in one’s emotion, that means leaning-in to sadness or anger or general grumpiness or happiness or joy … the full gamut. Being present in joy brings bits of euphoria, of seeing a full world of shimmering glory. Even the potholes of life. The bumps in the road. The little imperfections. All take on the caste of beauty. Of wholeness.

When in the ooky doldrums of a mental flu, not so much. And for me it’s the biggest trap. It’s when I go silent. When my world view shuts down. When the out there of day-to-day life separates itself from the interior floods of anguish or rage or any other state that isn’t perfected as a shimmering … yes joyful … reality.

And them I’m alone in it. Unnamed. Unknown. Emotions buried with little bits of leakage that come out disguised in a hail of intolerance. In why me-isms. In do-I-have-to-isms. When really I’m sad because my darling man just asked me if we were really married.

I had nodded my head. Started to tell the story.

He professed a lovely surprise that we’d been together for 26 years. That we’d married each other the first time on the top of a mountain in Jordan 25 years ago; had done it with a Rabbi and a New York City marriage license, a second time, 23 years ago at a decommissioned Synagogue on the Lower East Side.

How it had been the wedding of the decade with waiters so cute everyone fell in love with them.

How our friend Ray started out with Mozart and segued to Sentimental Journey as we walked down the aisle. How our recessional became a Conga line to a 1930s recording of a Cuban band.

How the magic of the place gave our Rabbi visions of its glorious past, channeling its former Rabbis and Cantors as he intoned the beautiful words of our marriage ceremony.

All of that in a moment. One I feel now. Much removed. Three weeks later. Tears in my eyes, thinking about loss and gain. About the lovely smiles on my darling man’s face as I told him the story of who we were.

Caregiving for a dementia patient is a mixture of joy and cruelty.

My glorious man tells me he loves me all the time. Middle of the day, middle of the night, opening a bathroom door, as I am washing dishes.

What isn’t there is the connective tissue of our 26 years. The good of them. The rough patches. The sharing of life and one’s deepest thoughts and feelings.

That’s what I am mourning lately. What feels so hard and interrupts my day-to-day. The connections that bind. The reality of loss. And why, at times, I just don’t want to see.

Caregiving for a dementia patient is not for the faint of heart–but you are not alone. There are organizations that can provide a lifeline to caregivers from groups to engage with, to real help finding resources. Here are few to consider (click on the name to open a new tab).

Alzheimer’s Association

Family Caregiver Alliance – Frontotemporal Dementia Resources

In New York City – Caring Kind

 

 

 

 

Of endings and beginnings … Welcome 2023!

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Paris-Brest for New Year’s Eve

I admit to a hard December. Everything out of sync. Stressed. Uncertain. Out of balance. Scared at the enormity of the challenge of caregiving. But finding joy. Moments of peace. Being present even when things felt chaotic. My therapist even asked me if maybe I was done because my goal of living in the moment of my emotions was reached.

I was, admittedly, taken aback.

“What? Finished?”

Reflecting a little bit more I said, “No. Not yet.”

That hesitancy was the realization that caring for one’s mental health is never over. And having that chance to dwell for 50 minutes every couple of weeks is like finding bits of gold panning in the stream of one’s own psyche.

And yes. I’ve been really depressed in my life so this all feels so normal. Sleep well and I have that much more opportunity for riding the ebbs and flows with ebullience, sleep too little and I’m grouchy and stressed. Pretty simple formula!!!

Meanwhile, in the real world of day-to-day … I have a book to write (I am behind), Jed’s health to attend to (Cardiologist on Friday), part time consulting work to augment the bills, and all the rest + those kitties.

Still. The New Year is a pause. A chance for something. A blank slate to relish in. Clean, unlined, and absent of any smudge marks from the erasures of the things one doesn’t feel inordinately proud of.

2022 was an enormous year for me. I can brag about getting a book contract for a new work on women’s boxing, a monthly column for my friends at Women’s Fight News, and a memoir piece to be included in a book called The Difference (working title), that will be published in 2023.

I also had a blast with my iconoclastic pals Chris and Eddie on our WAAR Room podcast and finished up a nine month mastermind group with dear friend Achim Nowak’s My Fourth Act,which brought me new connections and new friends.

As for 2023. So much to do! And not so much resolutions as a list of challenges!

  • Finish The Promise of Women’s Boxing (working title)!
  • Be more in balance with caregiving
  • Maintain my journal again (yep, been a while)
  • Write pieces for Girlboxing with more regularity
  • Be more consistent in the gym! Months cannot go by any longer!
  • Mindfulness in all things
  • Nurture my friendships and explore new ones
  • Expand the community of caregivers
  • Have fun

I have so appreciated sharing the bits and pieces of my life-and all of you for reading them and giving of yourselves in your thoughtful comments and insights. I used to think I could do things alone. Perhaps a sign of finally growing up is knowing that I can’t.

Thank you all for teaching me that.

Wishing everyone a Happy New Year and a fabulous 2023!

 

 

 

Damages

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Damages reappear as unbidden apparitions

Big rivulets of unsealed fissures

Felt as a dull ache

A knowing sense of debilitation

Laced with unnamable remembrances.

 

I wonder about it

About how pain returns

How it comes due

The recompense

That and the vigorish

The payments on account

The little bits of soul separated in the rush to move forward

Hurriedly refusing the calls to look back

The map points

The cavalcade

How intransigence is the loss of everything.

 

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The thing about a good night’s rest

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I admit it. More to myself than anyone else. It’s been a long haul lately.

I came back from a week’s writing retreat and boom, whatever demons that had been lurking, engulfed me as so many microbes of infection. Seeping in everywhere at once, I’ve spent days that have morphed into weeks swatting away the no-see-ums of depression, hopelessness, and the nagging sense that I have no where to go. And in between, the daily stuff. Writing. Aiming for vulnerability. Spending time with Jed so that he feels loved, and wanted, and needed, and relevant.

And we’ve been through Jed’s rounds of medical appointments. His latest MRI showing progression, but only a small amount from last year to this year. Of course, adding them up, one year, plus one year, plus one year, and so on means more than a little when counted together. But it only confirmed what I already touch. The new realms of confusion. My own sadness at facing this new normal masked by a determined bravado, but in truth, as palpable as Jed’s “I do not understand” expressions.

Back in my late-30s, I experienced a major depression. Each day was a buzz of activity from my early morning runs on through my exhaustion as I rolled off to sleep having worked till 7:30 or 8:00 at night, and socialized or something else till late in the evening.

In the spaces in between, my eyes would leak tears as I tried to suppress the misery I felt. The aloneness. The despair. All wrapped in the package of not knowing what it meant to be. And how ridiculous I felt at being so late century. So post-modern. So wrapped up in the throws of my existential crisis. Not for a minute allowing myself the truth of it all.

In moments where my guard was down, I could hear my own ironic inner core whispering that the payment was due for an adulthood spent existing without making certain I’d examined all the nooks and crannies of hurt and trauma. For not living the truth of my own existence.

“Not those, again,” I’d decry, while also knowing that my life was as precarious as my sense of being. That I really was tipping over the line a bit, so much so that friends talked and queried, and offered me sanctuary.

So, here now, 30 years later. So much of a brilliant life later, I feel the edges of it. Not that tears leak, or that I despair, but that it is easy to lose sight of one’s reason and place in the world if one remains cut off from living it. From the touchstones that are the little bits of the jigsaw puzzle that is life and has just as much meaning as the larger corner pieces that anchor one’s self to the reality of one’s life.

Yesterday, I woke up having had a brilliant night’s sleep. I was so well rested and in turn felt so refreshed and happy. It’s not necessarily that the no-see-ums had spent their annoying course till next time, but I was reminded that life is this wonderful panoply of joy and fun intermixed with the range of stuff that can sometimes feel like quicksand and at other times like the sweetest of clouds scented by the privet flowers that have permeated the air in this part of Brooklyn.In other words, it’s just life. A moment’s blip in the scheme of things. And truly, nothing like a good, restful night’s sleep to bring on the brilliance again.

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A reminder that caregivers can face special challenges–and that you are never alone. Here are a few resources:

Alzheimer support for caregivers

AFTD caregiver support

Caregiver.org caregiving and depression