Tag Archives: dental hygiene for dementia patients

A room of my own?

The New Year has certainly brought its challenges. I planned on a slow start. That way, I’d have lots of time for the next steps of my new book, The Promise of Women’s Boxing, set to be published in June.

What I got was my second bout of COVID-19, and worst of all, Jed came down with it. Sure, there was sneezing, coughing, fever, headache, and some GI discomfort, but for Jed, there was also a sudden wave of confusion that was scary for both of us.

He quickly went on a course of Paxlovid to try to squelch the illness as quickly as possible, and for me, a turn in Izzi’s old room, where I’d set up my work area but now, a bedroom of sorts to make sure my non-stop coughing didn’t disturb Jed.

What I didn’t expect was a night of calm sleep.

Yes, I still responded to the sounds of Jed in the night. Even mopping up the floor where he’d had an accident, a feature of his COVID-19 response. But my time alone in what had been Izzi’s room was a respite of sorts. Time alone to drift. To sleep. To not sleep. To be fitful. All the moments that one has, but unscrutinized and interrogated. I was not awakened in the middle of the night; not plagued by my caregiver’s grumpiness at never having a break.

I’ve written about a caregiver’s need for self-care. Putting that into action is something else again. For me, it’s been a combination of claiming space to write a book, to go to the gym, to sit in a drift in a cafe when I have respite care from Jed’s companions Lynn or Maya, or some other action. But I admit to its being fleeting at times, and as Jed’s illness moves forward as an inevitability, I’ve come to learn that those moments to oneself become more and more a required feature of day-to-day life, any guilt about it be damned.

I also admit that it is unsettling at times. As Jed’s ability to recall who I am or whether we are actually married or not becomes a fact of our lives together, the notion of a shared room recedes as well. And yet he’ll ask, “Where are you sleeping?” Feeling his way to a past where we’d never have slept apart.

In those moments, I feel a shattering loss.

An echo of what was.

And there is a grief in life that can become so great that receding into Izzi’s old room becomes my only defense against a sense of utter devastation.

So now, Izzi’s old room is my room. The place where I climb into my bed at night, having firmly wished Jed a good night at the end of our evening routine of washing up, brushing teeth, and turning out the lights.

 

 

 

Another week

Sugar Ray in the afternoon

Is it a week already since my last post?  What a blur.

I went to Gleason’s Gym on Monday and Thursday. Even added crunches in the sit-up chair at the end my workout. I felt a sense of accomplishment. The reminder of what a touchstone the gym has been and how much I miss it when I don’t go on a regular basis. The moments of self-care so revitalizing to my sense of well being.

The emotional rollercoaster has been moving forward to find part-time companion care for Jed.

I feel he needs an interesting someone to have contact with for a few hours a couple of days a week. Someone who isn’t me and who won’t invoke feelings of being infantilized from time to time. Still it gives me such an overwhelming sense of responsibility as I make decisions on his behalf. I admit that it is tangled up with my sense of helplessness and failure. And yes, I know I do not have the power to fill in the missing spaces in his brain. Or unknot the tau protein clotted ends of his neuron cell axon terminals that can no longer communicate. And no, me beating myself doesn’t help either, but the feelings are there for me to work through.

Meanwhile, plowing forward, I made a connection with an organization that specializes in matching folks up and will have a first preliminary meeting this coming Tuesday. The challenge will be figuring out how to introduce the companion caregiver to him so that it will be something that he wants to do. We shall see, but I have the hope that once we get past the introductory phase, it will help Jed engage more. And maybe even pry him outside when the weather eases up a bit more.

And so it goes.

At the dentist

 

One of the issues caregivers face is ensuring proper dental hygiene for their loved ones. As memory slips, so does the concept of the kind of routines we take for granted as part of our normal day. The wakeup, hit the bathroom, shower, shave (if needed), floss, brush teeth, et al., becomes an illusive construct. The end of day wind down is the same. A foreign movie without benefit of subtitles.

“What? Brush my teeth, you’re so bossy!”

Caregivers know it hits straight into the dilemma of an individual’s sense of self and autonomy in the midst of an on-going memory meltdown.

At the dentist last week for Jed’s six-month check-up, we ran into the issue of dental hygiene. I’d warned our dentist on the phone when I made the appointment so she was prepared. What struck me though, was her incredible gentleness as she cleaned his teeth even as she used quite a lot more rigor than usual.

Sitting outside, I felt by turns sadness for what he was going through, guilt for not having implemented the secret sauce for twice daily brushing, and a sense of being beholden to her for her kindness.

“You’re doing good, Mr. Stevenson,” she said. “I’m so proud of you. I know this is hard.”

Jed didn’t complain and then in speaking with us afterwards she said, “Mr. Stevenson, I do need you to brush your teeth twice a day. And your wife, Malissa, is going to get you a special new toothbrush. It will be a lot of fun.”

One new Philips Sonic electric toothbrush plus a special new heavy duty prescription floride toothpaste later, we headed back to the dentist this week for a followup appointment to top off a filling that had come loose.

Sitting in the waiting room, I observed again the kindness the dentist showed Jed.

“Did you use your new Philips Sonic toothbrush today, Mr. Stevenson?”

He didn’t quite respond, and then taking a look inside his mouth said, “ah, it looks as if you did. Very good, Mr. Stevenson. That is wonderful. Keep up the good work.”

Yes, she was speaking to him like a six year old, but her manner had a sweetness, that disarmed his sense of violation at being told what to do.

What I felt was beholden to her. In what can seem like an indifferent world, her tenderness touched me deeply. I tear up now thinking of it. Just calling him Mr. Stevenson gave him an agency that was powerful.

Reflecting on it, I realized that it also gave me the sense that I wasn’t alone.

For further information on dental care for dementia patients, the Alzheimer’s Association has a very good primer, the link is here: Dental Care.

Aging Care also has some good suggestions: Oral Care Tips for Dementia Caregivers.

As always, please feel free to contact me if you need help with caregiving.