Tag Archives: sadness

On the road …

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Ragusa Ibla, Sicily, October 2025

It has been a long time since I traveled alone without any particular itinerary. If I have a mandate at all for myself it is to slow down my pace and drift.

That has proven a tall order as I find myself encountering moments of unexpected grief coupled with the inclination to fill my days from end to end rather than allowing them to unfold. Still … I’ve been managing to find that sweet spot. The first, I think, on the ferry from the Roman port of Civitavecchia to Palermo.

Palermo, Sicily, coming into port, September, 2025

Palermo, Sicily, coming into port, September, 2025

I had actually booked a stateroom for myself — a lovely little space with a window out to the sea. Having fallen asleep early, I woke up at around 3:00 AM. Making my way to the main area of the ferry, I passed by sleeping bodies in seats and on benches, before getting a cappuccinno from the lone barman.  We chatted for a bit, before I took my coffee out to the deck. The sea, the warm air, the lightening from a distant thunderstorm embracing me in the moment. I felt myself become the breezes. The bits of spray from the water as the ship steadfastly made its way across the Tyrrhenian Sea. Felt for the first time in many months a feeling of peace and the beginnings of drift I’d come to Italy to find.

I’m coming to my third week soon. I’ve been to Rome, Palermo, Malta to visit my friends Jocelyn and Tom, the ferry to back to Sicily, although that was less than two hours versus the thirteen to Palermo. Still as a travel day it had its own magic, along with the taxi ride up to Ragusa Ibla.

Now in Ortigia, Sicily … having found a cafe with WIFI, quite the surprise I’ll add, my days have more and more of those moments. Those pieces of time where I am free within myself. Yes, going to museums and all of the other “supposed to sees” that one encounters, but I also have given myself the permission to do nothing. To have a pajama day.  To start to unpeel the layers of a lifetime with Jed enough so that I do not cry every time a photo of him appears on my iPhone.

And so it goes …

Time is a foreign country …

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Time is a foreign country.

At least I think it is.

Days meld. As does the precise time on the clock. From intense activity to drift, with Jed in a place outside of time, outside of locale, outside of the ordinary and the distinct.

In the journey that is my caregiving world, I work hard to lean in. To accept the tickles and jokes. The multitude of “I love yous'” that come my way across the day and the night. In between sleeping. And wondering who is in the house and where the bathroom is.

I feel for his dislocation, but he takes it in stride. Smiles. Says, “is anyone here?”

I say, “No.”

“You mean it’s just you and me?  Yay!”

My heart smiles and aches. Just us and not us.

We’ve been out a bit.

Mani, pedi, haircut and shave day. And a lovely walk. Pizza. The weather fine. Observing flowers. The new green of Spring leaves. The many, many babies out and about in their strollers.

This last his joy.

New life. Flowers. Babies. Toddlers. Children.

He lies down on what used to be Izzi’s bed as I work at my mother’s old sewing table on the other side of the room.

Jed and Sugar Ray.

Pals.

Sharing the space. The company. Being near. Our little family with Milo our other kitty off somewhere … and Izzi long since on her own … though one of us, always, on her visits home.

Doctor’s appointments, medical tests, companion caregivers come and go. Days blend some more as do the new normals. With me forgetting, two Fridays in a row that it was a companion afternoon. And, truth be told, my joy as I opened the door. Whew. A free few hours. Hours I worked on my book about women’s boxing before taking a lovely unfettered walk.

And now a Saturday. Jed full of the need to sleep. On his bed. In the room where I work. Padding in and out. Before he’ll organize his books and and clothing for the umpteenth time.

“It’s me again,” he says, standing at the doorway.

“Hi,” I say.

“Goodbye,” he says walking off to the living room.

Been a while …

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Budding tree, Cadman Plaza Park, Brooklyn, March 2, 2023

I’d say my vision has certainly been selective of late. Well actually that’s pretty charitable. I’ve been downright sad with a tinge of hopeless, which means the exterior world has a way of disappearing. Too difficult to negotiate with feelings that make it almost embarrassing to speak any sorts of truth. Even to those closest to me or to the folks I know who are caregivers and connect to those feelings more often than any will say.

Staying present is this issue for me.

If one is present in one’s emotion, that means leaning-in to sadness or anger or general grumpiness or happiness or joy … the full gamut. Being present in joy brings bits of euphoria, of seeing a full world of shimmering glory. Even the potholes of life. The bumps in the road. The little imperfections. All take on the caste of beauty. Of wholeness.

When in the ooky doldrums of a mental flu, not so much. And for me it’s the biggest trap. It’s when I go silent. When my world view shuts down. When the out there of day-to-day life separates itself from the interior floods of anguish or rage or any other state that isn’t perfected as a shimmering … yes joyful … reality.

And them I’m alone in it. Unnamed. Unknown. Emotions buried with little bits of leakage that come out disguised in a hail of intolerance. In why me-isms. In do-I-have-to-isms. When really I’m sad because my darling man just asked me if we were really married.

I had nodded my head. Started to tell the story.

He professed a lovely surprise that we’d been together for 26 years. That we’d married each other the first time on the top of a mountain in Jordan 25 years ago; had done it with a Rabbi and a New York City marriage license, a second time, 23 years ago at a decommissioned Synagogue on the Lower East Side.

How it had been the wedding of the decade with waiters so cute everyone fell in love with them.

How our friend Ray started out with Mozart and segued to Sentimental Journey as we walked down the aisle. How our recessional became a Conga line to a 1930s recording of a Cuban band.

How the magic of the place gave our Rabbi visions of its glorious past, channeling its former Rabbis and Cantors as he intoned the beautiful words of our marriage ceremony.

All of that in a moment. One I feel now. Much removed. Three weeks later. Tears in my eyes, thinking about loss and gain. About the lovely smiles on my darling man’s face as I told him the story of who we were.

Caregiving for a dementia patient is a mixture of joy and cruelty.

My glorious man tells me he loves me all the time. Middle of the day, middle of the night, opening a bathroom door, as I am washing dishes.

What isn’t there is the connective tissue of our 26 years. The good of them. The rough patches. The sharing of life and one’s deepest thoughts and feelings.

That’s what I am mourning lately. What feels so hard and interrupts my day-to-day. The connections that bind. The reality of loss. And why, at times, I just don’t want to see.

Caregiving for a dementia patient is not for the faint of heart–but you are not alone. There are organizations that can provide a lifeline to caregivers from groups to engage with, to real help finding resources. Here are few to consider (click on the name to open a new tab).

Alzheimer’s Association

Family Caregiver Alliance – Frontotemporal Dementia Resources

In New York City – Caring Kind